Difference

This video was made by Clara Sigmon, a 13 yr old, about her brother David, who has Down syndrome. It's called "Difference is an Artist's Game" - it is very powerful and well-written/spoken. I'm impressed that she is in 8th grade!

The Perfect Day Trip

Raising a child with special needs can be challenging at times. For instance, if we plan a family outing, I have to think through the whole event to trouble shoot any unforseen circumstances that would make it difficult for Jack to participate. He dosen't enjoy loud gym's or loud music. In crowds we have to put him into his wheel chair or he'll wander off. If we are planning to walk a long way such as visiting amusement parks, or the Mall, we load up his wheel chair, because nothings worse that trying to get this big boy up off the floor when he's tired of walking.

I've finally found the perfect outing for Jack. He get's to ride in the comfort of his own car, listen to his own tunes on the radio and he can't wander away. We went to a wildlife park this past weekend and had the best time. At the wildlife park we were able to get closer to the animals than we would at any zoo. The animals came right up to the car and they would eat right out of our hand.

About halfway through the drive they had a gift shop, restaurant and picnic area. We stopped, shopped, ate and stretched our legs before heading back down the mountain to tour the rest of the wildlife park. This place gets five stars from me.

My Pew, Mine, Mine, Mine

Ever felt like New Years resolutions are made under duress. I make them because, I know everyone is making them and I'm suppose to make a New Years resolution, when actually, I know that I'll break my new years resolution once the year really gets underway, because I always do what I've always done and it's as simple as that! So to keep myself honest, I will resolve to not make a resolution this year (snicker).

New Years resolutions would be something out of the ordinary for me, because when it comes to doing something out of the ordinary it just doesn't happen often in our family, Jack, would never go for it, and there are times when everything revolves around Jack.

Mothers of special needs kids know what I'm talking about. For instance, at church we always sit in the same pew. Now I know that a lot of people tend to do that, but Jack insists on sitting in "literally" the same spot no matter what. One time, some visitors sat in Jack's spot, so Jack sat right down next to them, invading their personal space I might add, and it made them so uncomfortable that they got up and moved. Luckily they weren't offended and thought it was funny, but I was not amused.
I spent the next 5 minutes fussing at him in a whisper about how to behave, and of course it went in one ear and out the other. I could tell he wasn't listening to a word I said, because after I had finished my lecture on behavior, he just looked at me like I was crazy, pointed to the bag of cheerios and signed "more".

Going to church is a challenge for our family. Some churches have ministries for people with special needs, but our church does not, and I don't feel led to start one up. Maybe I'd be the perfect person to do it, if I didn't have a special need myself (named Jack). I just don't think I could fit it in with all the other stuff I do for him. Our big problem is that Jack is too old for the children's Sunday School classes but doesn't fit in with the youth program. The Youth Group will be great for my other kids when they get to Junior High, but Jack doesn't socialize or read/write at that level. He'd enjoy the nursery class if the high chairs weren't too small. So we take the other kids to Sunday School and my husband and I take turns sitting with Jack in the sanctuary while the other goes to class(it's also why Jack gets to sit in the same spot every week). As a result my husband and I never go to class together, and haven't for years and I miss that. We tried taking Jack to class with us, but he doesn't like to do that and forcing him to do something in a public setting that he doesn't want to do well...I just don't want to go there, plus I hate it when he misbehaves at church.

I asked a friend of mine who also has a child with special needs, how they handled Sunday school and church activities. She tells me that they have the same problem, of what to do with their child concerning Sunday School and church. So if you have found this blog and you also have a child with special needs and you don't know how to get connected in to your church, never fear, you are not alone, but I don't have any answers for you. I have something better, this promise:

"The Lord himself goes before you and will be with you; he will never leave you nor forsake you. Do not be afraid; do not be discouraged." Deuteronomy 31:8